O18 IBD care in 2020: results from the first IBD UK patient and service benchmarking tool

2021
Introduction Aligned to the 2019 IBD Standards, IBD UK developed a national Benchmarking Tool comprising a Service Self-Assessment for healthcare professionals and a Patient Survey. The aim was to qualify current local service performance to facilitate future quality improvement. Methods The IBD Patient Survey ran from 8/7/19–22/11/19, and predominantly focussed on patient experience in the preceding 12 months. The Service Self-Assessment ran from 1/10/19–31/1/20. Estimates were encouraged where formal audit data was not available. Results 10222 patients and 166 IBD (Inflammatory Bowel Disease) services (134 adult, 32 paediatric) completed the tools. Services cared for a median of 2000 adult (IQR 1400-3500) or 165 paediatric (IQR 100-280) patients. 38% (12/32) of paediatric and 21% (28/134) adult services saw >90% of patients with suspected IBD within 4 weeks of referral. 54% (1133/2104) of recently diagnosed patients felt what mattered to them was taken into account when making decisions about treatment and care. During a flare 77% (127/166) of services reported being able to respond to >90% of patients contacting the IBD service advice line by the end of the next working day. 61% (6174/10071) of patients reported having contacted their IBD service advice line. When admitted to hospital 54% (89/166) of services reported >90% of patients were seen within 24 hours of admission by an IBD specialist on a gastroenterology ward. For elective surgery 69% (114/166) of services reported waiting times of Conclusions The IBD UK Benchmarking Tool provides location-matched service performance and patient experience data. To support and measure impact of quality improvement, the Tool will be repeated longitudinally.
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